DISCLAIMER
The information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.compose your message
message sent
email sent successfully
Trusted Resources: Community Center
Online groups, photo galleries and blogs
Sickle What?
Sickle What? is an educational book written in simple language with helpful illustrations to explain complex medical concepts and terminology. Sickle What? arms patients and parents of newly diagnosed children with the knowledge they need to understand and manage sickle cell disease (SCD).
Information about what SCD is and how a person gets it is broken down into easy-to-understand terms to help parents better understand and be able to explain SCD to a child – empowering the child to understand what is actually happening inside their body. Sickle What? shows readers how to read and understand a lab report, what action steps to take when pain occurs and the importance of asking questions and communicating openly with doctors.
+myBinderRelated Content
-
news & eventsThe University City Turkey TrotCome celebrate the 8th year of the Unive...
-
education & researchBone Marrow Transplants for Sickle Cell DiseaseA bone marrow transplant is the only way...
-
education & researchRealizing Effectiveness Across Continents With Hydroxyurea: Enrollment and Baseline Characteristics of the Multicent...Despite its well-described safety and ef...
-
Community CenterT-Boz: Vote on Tuesday Like Your Health Depends on ItAs a mother, I know that I have a respon...
-
news & eventsJohns Hopkins researchers offer new protocol to potentially cure sickle cell diseaseThere's new hope for patients who have b...
-
Community CenterToday’s Faces of Sickle Cell Disease: Swee Lay Thein, MB, BS, FRCP, FRCPath, DScSwee Lay Thein was educated in both Mala...
-
people & placesNew York State Sickle Cell Advocacy Network (NYSSCAN)New York State Sickle Cell Advocacy Netw...
send a message
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.